Sarepta Therapeutics – Rare Disease Grants & Donations Program
Corporate Grants Supporting Rare Disease Education, Patient Advocacy, and Community Support Worldwide
Sarepta Therapeutics provides charitable grants and donations to organizations working to improve the lives of individuals and families affected by rare neuromuscular diseases. Funding supports patient and caregiver education, unmet patient needs, standards of care, research awareness, and initiatives that strengthen rare disease communities.
Applications are accepted year-round and generally reviewed monthly, with priority given to programs addressing Duchenne muscular dystrophy, limb-girdle muscular dystrophy, and other disease areas of focus for Sarepta.
Organization: Sarepta Therapeutics
Support Type: Corporate grants and charitable donations
Geographic Focus: Global
About the Funder
Sarepta Therapeutics is a biopharmaceutical company focused on developing precision genetic medicines for rare diseases.
Beyond its research and development activities, Sarepta supports patient advocacy groups, nonprofit organizations, academic institutions, scientific and medical associations, and other organizations working to address challenges faced by rare disease communities.
Its corporate giving programs are designed to advance education, support patient and caregiver needs, and encourage collaboration among organizations serving people affected by neuromuscular disorders.
What This Program Supports
Sarepta considers grant and donation requests across the spectrum of rare neuromuscular diseases, with priority assigned to Duchenne muscular dystrophy, limb-girdle muscular dystrophy, and related areas of company focus.
Rare Disease Education & Awareness
Programs that increase understanding of rare neuromuscular diseases, improve disease education, and raise awareness of ongoing research.
Patient & Caregiver Support
Initiatives addressing unmet needs of individuals and families affected by rare diseases, particularly programs that benefit broad patient populations.
Quality of Care
Programs promoting high standards of care and helping patients, caregivers, and communities access relevant educational information and resources.
Patient Advocacy & Community Engagement
Initiatives that strengthen patient advocacy organizations, support charitable causes important to rare disease communities, and encourage collaboration among stakeholders.
Collaborative Learning
Educational and community initiatives that bring together patients, caregivers, advocacy organizations, healthcare stakeholders, and other members of the Duchenne and broader rare disease communities.
Eligible Support Types
Sarepta considers:
- Charitable grants supporting eligible programs and community initiatives
- Donations supporting rare disease patient communities
- Educational and awareness initiatives
- Collaborative programs addressing unmet patient needs
- Charitable causes and events important to the communities Sarepta serves
Sarepta also operates separate sponsorship, fellowship, and independent medical education funding programs, each with its own requirements.
Eligibility & Preferences
Potential applicants include:
- Patient advocacy organizations
- Nonprofit organizations
- Academic institutions
- Scientific and medical associations
- Other organizations serving rare neuromuscular disease communities
Priority is given to requests that:
- Address Duchenne muscular dystrophy, limb-girdle muscular dystrophy, or another Sarepta disease area of focus
- Benefit a broad population of patients or caregivers
- Advance medical or disease education
- Address unmet needs within rare disease communities
- Promote high standards of care
- Provide meaningful value without duplicating existing initiatives
Geographic Eligibility
Sarepta considers requests supporting the rare disease communities it serves globally.
The general Grants & Donations Program does not publish a restriction limiting applicants to the United States.
Applicants outside the United States should confirm any applicable requirements through the online application portal.
Ineligible Requests
Sarepta identifies several categories of requests that typically cannot be supported:
- Funding that benefits only one individual or a narrowly defined subset of the disease community
- General education programs that do not highlight a disease area relevant to Sarepta
- Programs that duplicate initiatives already underway in the community
- Projects duplicating efforts Sarepta has previously supported
Meeting the program’s stated priorities does not guarantee funding.
Funding Amounts
Sarepta does not publish standard minimum or maximum grant amounts for its general Grants & Donations Program.
Award amounts are determined based on the proposed initiative, alignment with funding priorities, and available resources.
Timeline & Review
📅 Application Timeline: Rolling / ongoing
📅 Review Schedule: Generally monthly
📅 Response Timeline: Within 90 days of submission
📅 Recommended Lead Time: Apply well before the planned program or activity to allow for review.
No fixed annual deadline is published for the general Grants & Donations Program.
Application / Request Process
Organizations must submit grant and donation requests through Sarepta’s online application portal.
Applicants should clearly describe:
- The organization’s mission and activities
- The rare disease population served
- The proposed program or charitable initiative
- The unmet need or educational objective being addressed
- How the program aligns with Sarepta’s therapeutic priorities
- The anticipated benefits for the patient or caregiver community
Sarepta generally reviews requests monthly and contacts applicants within 90 days of submission.
Apply / Learn More: https://www.sarepta.com/about-us/grants-giving
Why This Opportunity Is a Good Fit
This opportunity is particularly well suited for organizations that:
- Serve individuals and families affected by rare neuromuscular diseases
- Focus on Duchenne or limb-girdle muscular dystrophy
- Provide patient and caregiver education
- Address unmet needs affecting broad patient populations
- Promote quality of care and disease awareness
- Support collaboration among rare disease stakeholders
- Seek charitable funding without a fixed annual application deadline
Sarepta Therapeutics’ Grants & Donations Program offers a specialized corporate funding opportunity for organizations working to improve education, support, and quality of life within rare disease communities.
Corporate Grants Guide Notes
Review Type: Rolling applications with generally monthly review
Response Timeline: Within 90 days
Funding Amounts: Not publicly specified
Geographic Focus: Global
Best Suited For: Patient advocacy organizations, nonprofits, and other eligible institutions supporting rare neuromuscular disease communities